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Walk: World Day for Rare Diseases

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On February 27, 2016, there will be a commemorative walk for the World Day of Rare Diseases, organized by the Bahia Association of Friends of MPS (ABAMPS).

 

Theme
Commemorative Walk: World Day for Rare Diseases

Data
February 27rd, 2016

Location
Barra Lighthouse

Time
8h 

 

Meet ABAMPS
The Bahia Association of Friends of MPS (ABAMPS) offers support to patients with rare diseases, from confirmation of diagnosis, legal support for access to medications, medical treatments and consultations, support house for residents in other municipalities, intermediation with secretariats of health of municipalities for PDT - treatment outside the municipality, articulation for maintenance of treatments - because, even with a court injunction, medication is not always made available by the government - enabling drug infusion in municipalities where patients do not need to travel every 15 days , social support for needy families and dissemination of the disease among the community and municipalities in the State of Bahia.