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Rare Children's Day

18/10/2014

The Bahia Association of Friends of Mucopolysaccharidoses (ABAMPS) held, on October 18, the Rare Children's Day, at the Rehabilitation Center of Social Works of Irmã Dulce CER4, in an initiative of the professor of the Medicine course, Dr. Marcos Antônio Almeida Matos, with the objective of providing a special day for the children assisted at the place, combining leisure and multidisciplinary care.

For this, the program was attended by medical students from the Bahiana, supervised by Prof. Marcos and dental students from the Bahia Academic League of Oral Health, as well as guidance provided by a nutritionist.

"We cannot forget that any and all actions carried out always carry the important mission of disclosing diseases to the community (health professionals and the population in general). The Ministry of Health instituted, in February 2014, a unified policy for patients of Officially baptized as the National Policy for Comprehensive Care for People with Rare Diseases - ordinance 199 represents a great advance for patients and families, but the lack of knowledge about the diseases and, consequently, the early diagnosis for the beginning of treatment is still great." highlights the volunteer and supporter of ABAMPS, Simone Matos.

She explains that this is the first time that the association holds an event of this size and that it was possible to enroll the children so that they are regularly attended to at CER4.

Meet ABAMPS
The Bahia Association of Friends of MPS (ABAMPS) offers support to patients with rare diseases, from confirmation of diagnosis, legal support for access to medications, medical treatments and consultations, support house for residents in other municipalities, intermediation with secretariats of health of municipalities for PDT - treatment outside the municipality, articulation for maintenance of treatments - because, even with a court injunction, medication is not always made available by the government - enabling drug infusion in municipalities where patients do not need to travel every 15 days , social support for needy families and dissemination of the disease among the community and municipalities in the State of Bahia.

Learn more: http://www.abamps.org.br/