Neuromuscular Disease and C-HTLV Outpatient Clinics Bahiana Health are recognized as a Specialized Care Service for Rare Diseases

The Neuromuscular Diseases Outpatient Clinic and the C-HTLV Outpatient Clinic, which operate within the Neuroscience Center of Bahiana Health, were authorized by the Ministry of Health (MS) as a Specialized Care Service for Rare Diseases (SAEDR). From now on, the units are recognized for the treatment of some rare diseases of genetic origin (hereditary amyloidosis, spinal muscular atrophy, amyotrophic lateral sclerosis, muscular dystrophies) and of non-genetic origin (myasthenia gravis and myelopathy associated with HTLV-1).

By being accredited by the Ministry of Health as a specialized unit, the service becomes part of a coordinated national network, with access to care provided by a multidisciplinary and specialized team. This accreditation enables the expansion of the multidisciplinary team and the incorporation of diagnostic technologies for rare diseases of genetic origin.

In addition to improving clinical outcomes and reducing the long and difficult journey to access early diagnosis and specialized treatment, SAEDR goes beyond the implementation of a public health policy, placing the SUS at the service of equity, science and life, offering dignity, autonomy and hope to those who, for a long time, were invisible in the health system.